Our Story: Why I Built Neuro Registry
If you or a loved one have ever tried to get an ADHD or Autism assessment in the UK, you already know the feeling that comes with that first GP conversation: the sinking realisation that this could take years.
I'm Anthony, the founder of Neuro Registry. This website is a project born out of my own family's experience, and I wanted to explain why it exists in my own words.
Why did you start Neuro Registry?
When I was looking into my own ADHD and autism assessment, there wasn't much out there beyond the NHS, and the waiting list was so long I gave up on the autism assessment altogether. Three of my four children were diagnosed before I was. One of them was let down by the NHS, and we had no choice but to go private. Finding someone was hard enough; finding someone we could actually afford took hours of searching. That combination, long waits, NHS failings, and a private market that's nearly impossible to navigate, is what made me think: there has to be a better way to help people find the support they need.
You're not a clinician: what qualifies you to build this?
I'm not a medical professional, no. I work in IT and have a degree in computer science and cybersecurity. What I bring is the skill to actually build and run a platform like this properly, and keep improving it over time. What I noticed was that there wasn't a clear, central directory pulling together assessment options across the UK, and you were stuck googling for hours, piecing it together yourself. I started building this in early 2026, working on it in the background until the platform was properly ready to go live.
Why now?
Partly because the platform was finally ready, but mostly because I kept hearing other families going through the exact same thing we did. The more I heard those stories, the more it felt like something that would have genuinely helped us, and could help them too.
What is Neuro Registry, exactly?
It's a directory of medical professionals, care providers, and support organisations that help people get the assessments and support they need, whether that's for daily living or workplace issues. The NHS is still massively slow in a lot of areas of the UK, and we can't promise to fix that. What we can do is connect you with care providers faster, and give you ways to filter and search that actually save you time instead of losing hours to Google.
If clinics pay to be listed, how is that different from the lead-gen directories you're against?
Partners pay for one of a few tiers, three for clinics and two for workplace providers, and higher tiers get better visibility and features, including SEO backlinks to help drive more connections. What we don't do is sell your details or charge partners per patient or per appointment. It's a subscription for features and visibility.
If someone's been told they're facing a 2-year wait for an assessment, what should they do on the site?
Filter by waiting times. That's the fastest way to find providers who can fast-track an assessment rather than leave you stuck on a list for years.
Is this a finished product?
No, it's a fairly new platform. The goal is for it to earn a reputation for actually being helpful, and over time to expand beyond neurodiversity into other areas of health too.
If someone's overwhelmed right now, what's the first thing they should do on the site?
Start by looking at local providers, compare what they offer, consider whether NHS Right to Choose applies to you, and build a shortlist from there. You don't have to decide everything at once, just start narrowing it down.
Can people reach you directly if they're stuck or have questions?
Yes, email me at [email protected], or find me on LinkedIn. I'm not a faceless directory; if you have any questions or suggestions about this site, please feel free to reach out.
A Few Practical Things to Know
Before you dive in, here's some background that might help:
- NHS Right to Choose (RTC) lets patients in England access NHS-funded private assessments, often with much shorter waiting times than a standard NHS referral. It's worth checking whether a provider accepts RTC referrals.
- Regulatory checks matter. The Care Quality Commission (CQC) inspects and regulates health providers in England, so checking a clinic's CQC rating is one of the simplest ways to know you're in safe hands. It's just as important to check the individual practitioner's professional registration too: GMC for doctors and psychiatrists, HCPC for psychologists and other allied health professionals, and NMC for nurses. All of these are things we include on provider profiles.
- Qualifications matter too. Look for GMC-registered consultant psychiatrists, HCPC-registered clinical psychologists, or NMC-registered nurse specialists, especially if you'll need a Shared Care Agreement with your GP afterwards for ongoing medication management.
- Pricing varies a lot. Total costs, including post-diagnostic feedback and medication titration where relevant, can differ significantly between providers, so it's worth comparing more than one before deciding.
We built Neuro Registry to make all of this easier to find in one place, instead of scattered across forums, Reddit threads, and dozens of separate clinic websites.
Thanks for reading
Anthony
This is the first post of many. Going forward, expect Q&As with partner clinics, practical guides for navigating assessments and Right to Choose, and honest advice from families who've been through it. If you're a clinician or provider or member of the public who wants to contribute, or a family with a story worth sharing, please get in touch.